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8th National MND Conference, Melbourne 12 September 2016

Care, Comunication and Collaboration were the themes of the 8th National Motor Neurone Disease Conference held in Melbourne on 12 September, 2016. Abstracts and presentations are now available.

Program and Abstracts

Download the 8th National MND Conference Abstract Book
Program-screenshot.PNG



SPEAKER PRESENTATIONS

Keynote Speaker: Dr Jim Howe 

'He's no more use to me than the milkman.' Improving care for people living with ALS/MND

A personal perspective: Duncan Bayly with Kat Bayly 
What is living well with MND?

 

CARE

Julie Labra  
Rate of disease progression: a prognostic biomarker in ALS

Ashley Crook 
Genetic counselling for MND: what do we know so far? 

Lois Quick
Exploring experiences of hidden aspects of care in MND
 

COMMUNICATION

Janet Mostovoy
Voice banking - Growing need for people especially with bulabr inset MND 

Rachael Russell
A clinical reasoning framework for implementation of eye-gaze technology for individuals with MND 

Jess Wright
Regain control with Grid3

Keynote Speaer: Professor Naomi Wray
Sporadic ALS research needs data!

 

COLLABORATION

Stephanie Williams
Getting comfortable with managing pain and pressure care in people with MND 

Kylie Preston
Carers and the NDIS

Samantha Graham
Mind resilience training that creates community: a case study of MND carers in Queensland

Keynote Speaker: Dr Bradley Turner
Towards gene therapy for MND

 

POSTERS

Professor Samar Aoun
Breaking the news of a diagnosis of motor neurone dIsease: What works and what does not?

Professor Samar Aoun
Receiving the news of a diagnosis of motor neurone disease: What does it take to make it better?

Sarah Bell 
Multdisciplinary allied health care within the NDIS framework
Simon Conti/Gavin Fahey
A simple hands-on workshop can improve care for people living with MND and non-invasive ventilation

Gaylene Cowan/Jennifer Gunn
Communication and collaboration - palliative care case study

Ingrid Fair/Anna Reid
MND within a community rehabilitation context: the emerging experts

Roseanne Gibb
Assistive equipment use by people with MND in Australia

Cathy Gluyas 
A pilot study of an emotional support intervention for MND caregivers

Annalise James 
Preserving quality of life with quality care

Renae Knight 
OT foundations in the care of clients with MND

Sharon Kwiatkowski
Community-based respiratory support for motor neurone disease clients - walking the fine line

Lois Quick
Metro South Motor Neurone Disease Service

Sarah Solomon 
OT and motor neurone disease - adjusting and adapting to an ever moving target

Cherylyn Vickery
Advance care planning - analysing the gaps

 

MND Australia would like to thank our hosts MND Victoria, the conference organising committee, speakers, poster presenters, sponsors, staff and volunteers for making the 8th National MND Conference such a great success. 



 

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