-
Evidence based information for the health or community care professional to guide practice
-
Information for the client, carer and family
Once all are informed, an individual pathway for addressing the need can be developed and actioned.
Excerpt from the Statement of good practice for the management of ALS/MND
It is essential that people living with ALS/MND are enabled to make informed decisions about living with ALS/MND so as to achieve quality of life, and dignity in living and dying. Adopting a proactive approach to disease management, and respecting the needs and wishes of the individual and their caregivers is imperative.