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Influencing policy


  • Advocated for the rights of all Australians with MND at a Roundtable on interface between the National Disability Insurance Scheme and the aged care sector
  • Adopted the five rights petition that to date has the support of over 800 people

Australia's Parliament HouseIn March 2013, MND Australia and the state MND associations joined disability advocates across Australia to celebrate the passing through Parliament of the NDIS Bill.  This landmark reform is testimony to several years of relentless lobbying by disability campaigners.

The new national disability insurance scheme (NDIS) will go a long way to meeting the complex and individual needs of people living with MND who are under the age of 65 when diagnosed. The task is now to ensure that people diagnosed with MND when over the pension age are not disadvantaged compared with NDIS participants.

MND Australia plays an authoritative role in championing the rights of all Australians living with MND.  Following the submission by MND Australia on the Response to the National Disability Insurance Scheme Bill 2012, National Executive Director of MND Australia, Carol Birks was invited to the NDIS Roundtable on the interface between the disability and aged care sectors with Ministers Jenny Macklin and Mark Butler. In the last year Carol Birks also met with key parliamentarians including Senator Jan McLucas, Senator Sue Boyce, Senator Mitch Fifield, Peter Dutton MP and Alex Hawke MP. 

At this time of political change there are many uncertainties, but no matter what the outcome of the 2013 Federal election, MND Australia will continue to fervently champion the rights of all Australians touched by MND.

Related links

Influencing policy

During MND Week and Global Day, MND Australia and the state MND associations ran social media campaigns to encourage the public to join our lobbying efforts to defend the rights of people with MND. Read more

Influencing policy

As the national voice of people with MND, MND Australia works on shaping policy to empower the MND community. See our submissions to national inquiries that affect the lives of people living with MND. Read more

Cornflower – symbol of hope

MND Australia worked closely with MND Queensland and MND NSW to initiate and support a Regional Advisor Service for Queensland. The first Regional Advisor is making great progress in assisting Queenslanders with MND.

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